By registering for the MyDNAid service, I voluntarily agree to the following terms regarding my biological sample and genomic data:

1. Clinical Reporting: I understand that I will receive a clinical report detailing my genetic insights, and my referring doctor (if applicable) will use this data for my diagnosis and treatment management.

2. Sample Storage (Biobanking) & Data Custody: I consent to the secure storage of my genomic data in the NextGen Molecular Lab encrypted vault. I understand that a secure storage fee of $50/year applies from Year 2 to maintain my MyDNAid digital access and card decryption services. I understand that any future use of my physical sample will be strictly limited to research approved by a recognized Ethics Review Committee (ERC).

3. Data De-identification & AI Research: I understand that before my Whole Genome Sequence data is used for AI model training or scientific research, all direct personal identifiers will be permanently removed. I consent that my de-identified genomic data may be used for scientific research, including studies on African genomics and pharmacogenomics, and may be published in scientific journals.

4. Data Sovereignty & Privacy: I understand that NextGen Molecular Lab complies with the Kenya Data Protection Act (KDPA). My data will be handled with strict confidentiality, and no published research will ever reveal my identity. I understand my physical card holds my encrypted data, giving me ultimate custody.

5. Voluntary Participation: I understand that my participation is entirely voluntary. I can choose to withdraw my consent for future research at any time by contacting NML, without affecting my clinical care. (Note: Data already published or shared anonymously prior to withdrawal cannot be retrieved).

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